Tuesday, November 27, 2012
Getting Bigger
Not just me but my stricture is getting bigger too. I know that doesn't sound good, but it's actually really good. The bigger the stricture the bigger my esophagus is! That means less dilations I have to have done. Monday when we went to the hospital for another dilation I got to leave early because everything went so well. My surgeon says she wants to continue to do these dilations for another five weeks in a row then if everything has gone well by then we'll move to every other week. Fingers crossed! I have also gotten a little smarter and when Mommy and Daddy feed me I wipe my tongue off with my bib so I don't taste the nasty stuff...which was peas tonight...yuck!!! My mouth is still very sensitive but I am continuing to get better at eating everyday! There really isn't much news..but no news is good news and Mommy and Daddy are happy things have slowed down and as long as I can chew on something I'm happy :) Please pray for my stricture to get better and everything to go as planed! Thank You!
Thursday, November 22, 2012
T.J. Thanksgiving
So I'm not late I really wanted it to be T.J. Thanksgiving :-). On Monday we went back to the hospital for my scheduled dilation and everything went really well. I also got a PICC line put back in so that I don't have to keep getting stuck for new IV's every time I go back. It will stay in until I'm done with dilations. It's kind of a hassle for Mommy and Daddy but they thought it was the best thing for me. I do have some great news for you too, I got my first tooth! I'm doing a lot better with eating my food. My new favorite thing is blowing bubbles with my lips and laughing when Mommy tickles me.
Today is my first Thanksgiving and while Daddy and I played Black Ops 2 Mommy made dinner. My favorite part of Thanksgiving was when Mommy gave me some Cool Whip! That stuff is awesome if you've never had any. I didn't get to have any turkey, but I'm pretty sleepy so I'm going to go take my Thanksgiving nap. Happy Thanksgiving everyone!!!
So I'm not late I really wanted it to be T.J. Thanksgiving :-). On Monday we went back to the hospital for my scheduled dilation and everything went really well. I also got a PICC line put back in so that I don't have to keep getting stuck for new IV's every time I go back. It will stay in until I'm done with dilations. It's kind of a hassle for Mommy and Daddy but they thought it was the best thing for me. I do have some great news for you too, I got my first tooth! I'm doing a lot better with eating my food. My new favorite thing is blowing bubbles with my lips and laughing when Mommy tickles me.
Today is my first Thanksgiving and while Daddy and I played Black Ops 2 Mommy made dinner. My favorite part of Thanksgiving was when Mommy gave me some Cool Whip! That stuff is awesome if you've never had any. I didn't get to have any turkey, but I'm pretty sleepy so I'm going to go take my Thanksgiving nap. Happy Thanksgiving everyone!!!
Thursday, November 15, 2012
Another Dilation Down
On Monday we were back at the hospital for another dilation. We were there really early in the morning and I had a cold. Because of my cold the doctors had to do two tests an esophagram and a chest X-ray. The X-ray showed I was really congested and the doctors were a little weary about continuing with the dilation. But the results on the esophagram showed the the narrowing was pretty significant, so they wanted to do the dilation any way. When I actually got to have my dilation and it went really well. The doctors were really happy with how well the dilation went and I did good through the night so I got to come home on Tuesday. Since I've been home my cold has started to go away and I'm doing much better.
Mommy and Daddy have also been giving me baby food! The food is really gross and I can only have very small bites or else I choke. I do love spitting it back out at them. I have a feeling they aren't going to stop giving me these so I guess I'm just going to have to learn how to swallow.
You may be wondering why it's taken until Thursday for T.J. Tuesday, well the reason is our oldest puppy Shyla (Shy Shy, 17 years old) passed away Tuesday. So we were just a little preoccupied with her. Thank you all for the kind thoughts and prayers, but please continue them until I no longer have to go back to the hospital.
On Monday we were back at the hospital for another dilation. We were there really early in the morning and I had a cold. Because of my cold the doctors had to do two tests an esophagram and a chest X-ray. The X-ray showed I was really congested and the doctors were a little weary about continuing with the dilation. But the results on the esophagram showed the the narrowing was pretty significant, so they wanted to do the dilation any way. When I actually got to have my dilation and it went really well. The doctors were really happy with how well the dilation went and I did good through the night so I got to come home on Tuesday. Since I've been home my cold has started to go away and I'm doing much better.
Mommy and Daddy have also been giving me baby food! The food is really gross and I can only have very small bites or else I choke. I do love spitting it back out at them. I have a feeling they aren't going to stop giving me these so I guess I'm just going to have to learn how to swallow.
You may be wondering why it's taken until Thursday for T.J. Tuesday, well the reason is our oldest puppy Shyla (Shy Shy, 17 years old) passed away Tuesday. So we were just a little preoccupied with her. Thank you all for the kind thoughts and prayers, but please continue them until I no longer have to go back to the hospital.
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| Before Food |
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| During Food |
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| After Food |
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| Daddy when is it my turn to play Black Ops 2? |
Tuesday, November 6, 2012
Swallow Study Results
Monday morning we went to Children's and I got my dilation. The doctors said my stricture had actually gotten smaller (not good) but when they actually did the dilation with the balloons they went in very smoothly and really better than expected. They went from 6mm to 8mm and both were fine. So they still cleared me for my swallow study for today. The swallow study was very cool. They put me in a squishy blue chair and and gave me some applesauce! Mommy and Daddy were watching me make a mess, but also watching a TV. They said it was me on TV and they could see me eating the food and watch me swallow it and watch it go all the way down to my belly! I passed the thick baby foods test, but not the thin liquids which means I still can't take a bottle of milk, but I do get to eat stage 1 baby food! Mommy and Daddy took me to the store and bought me 10 different kinds of food to try. Tonight I'm gonna try sweet potatoes, maybe there will be a funny video next T.J. Tuesday!
P.S. I also had my first Halloween and I went as a chubby raccoon! You can see down below!
Monday morning we went to Children's and I got my dilation. The doctors said my stricture had actually gotten smaller (not good) but when they actually did the dilation with the balloons they went in very smoothly and really better than expected. They went from 6mm to 8mm and both were fine. So they still cleared me for my swallow study for today. The swallow study was very cool. They put me in a squishy blue chair and and gave me some applesauce! Mommy and Daddy were watching me make a mess, but also watching a TV. They said it was me on TV and they could see me eating the food and watch me swallow it and watch it go all the way down to my belly! I passed the thick baby foods test, but not the thin liquids which means I still can't take a bottle of milk, but I do get to eat stage 1 baby food! Mommy and Daddy took me to the store and bought me 10 different kinds of food to try. Tonight I'm gonna try sweet potatoes, maybe there will be a funny video next T.J. Tuesday!
P.S. I also had my first Halloween and I went as a chubby raccoon! You can see down below!
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