Little Fishy


       No I didn't get a fishy although I'd really love to have one :)  I am the little fishy!!!  I started swimming lessons last Saturday and I can't wait to go back this coming Saturday.  At first I was unsure of everything, but by the end I didn't want to leave!  I think I am really going to enjoy swimming.  I haven't gone to OT the last few weeks because of doctor appointments interfering, but should be going back next Monday.  I am doing very well with how much I eat by mouth.  My feeding specialist is having Mommy log everything I eat by mouth for three days to see if they need to tweak anything on my night feeds or g-tube feeds!  I was sick for a little while with a temperature of 102.2 so I wasn't wanting to eat very much, but I am slowly getting back into the groove.  My pediatrician said I just have a virus that should go away on its own so we're just keeping a close eye on me.  I also had some glands show up on my neck that worried Mommy a little bit.  My doctor said they usually grow to help fight off infection so not to worry, but if they get any bigger to let him know.  Mommy, Daddy and I have been getting ready for Halloween the last couple weeks.  I forgot to mention in my last couple of blogs that we went Apple and Pumpkin picking and we also wen to a costume party!!!  We also carved pumpkins for the first time in my life!  I really didn't like the feel of the pumpkin seeds and stuff so I mainly just watched, but they turned out great!  I know that last couple of weeks I haven't posted pictures so I hope you enjoy all of the ones on this blog :)

 

                                                                       Apple Picking

                                                                     Pumpkin picking

:)

                                                                    Playing on the hill

                                                         Watching tv and eating cheese :)

                                                                       Eating good

                                                                     Cutest Lion

                                                           Shark, Lion, and Spider-man

                                                                                      :)

                                                                          Sweet face

                                                                      Mr. Top Gun

                                                                    Pumpkin carving

                                                                        Finished

                                                             How I felt about all of it...

                                                                   I love my car bed!

                                                                 Swimming with Momma

                                                          Riding my bike

                                                                    Helping with my feeds

Feeding Update


       I had a great appointment.  My feeding specialist is very happy with how I've been doing and where I am right now!   We are keeping everything the same as far of g-tube feedings which is great seeing how it was a little overwhelming for a little bit.  We are changing my night feeds though. (J-tube feeds) Instead of 68ml of formula an hour for 4 hours and 45 minutes it's now set to 70ml an hour for 3 hours a night. As most if not all of you know this is very exciting for us.  When I first go to come home I was on my pump for 18 hours a day.  So 3 hours a day is amazing! We've been having a little bit of trouble with our internet and publishing these post.  Sorry for any delays and thank you so much for your continued prayers.  

A little mixed up 


       So last week I told you guys that my feeding appointment was Monday, but I got a little mixed up.  Its actually next Monday so no news on that.  I am however having problems tolerating my g-tube feeds.  If I haven't eaten anything at all its usually fine, but the tiniest bit of food really throws me off.  Also Mommy has been taking her time while giving it to me.  All my g-tube feeds are supposed to be bolus feeds which is where the food is dumped in all at once to stretch my stomach, but Mommy has been doing it a little slower like doing it all over 3 to 5 minutes and I'm getting very good at tell her and Daddy when to stop.  So please please please pray that I can tolerate my feeds and we get good news at the doctors on Monday.  Thank you.  

Good week 


       

       I had a good week!  Hope everyone else did too!  Sorry this post is late we've been really busy.  Daddy interviewed for Optical Manager and got the job!!!!!  We just got the news today and Mommy and I are so proud of him!  We have also been redoing my room the last couple of days :) that is mainly why this post is late.  Mommy Daddy and I put together my new bed (a car bed) and I love it.  We're also painting and hanging car themed decorations up.  I am and have been at my g-tube feeding goals and tolerating it just fine!  We're just waiting on my next appointment on Monday to see where we go from here!   OT was good this week my therapist can't believe how well I am 
talking.  Thank you for all of your prayers. 

My new car bed almost finished

I'll show ya'll the finished bed when my whole room is done :)

Putting the sticker on 

Taco!

 
                                                      

Jamming


reenactment of wedding crashers :)