Appointment Update 


       So...I still have my tube.  My appointment went very well.  They are extremely happy with how much I am eating, but I did lose 3 pounds since December and although 3lbs doesn't seem like much it is for me.  Mommy and Daddy were bummed, but Mommy would rather my surgeon make the call to pull my tube anyway and we see her May 28th.  The feeding specialist gave us tips to help add even more calories to my diet and hopefully that will help me gain weight and keep it on.  Please pray I can eat more and gain enough weight and keep it on to make my surgeon happy.  Over the weekend Mommy and I were in my aunts wedding.  I wasn't sure at first if I wanted to walk down the aisle, but Mommy told me if I did I could have a airplane toy I've been wanting and I could also get more suckers...in stead of walking down the aisle I ran. (I really wanted suckers and a new toy) :) but at least I did it...(at the last wedding I was in I only made it half way until I turned around and ran back to Daddy) Hope everyone is well and ready for April!  

Congratulations to my Aunt Ashley and her new husband Daniel.

                                                                      

Ready to be a ring bearer 

Playing in a table :)

Mommy grew up playing hide and seek in this same table

So silly

After the wedding

Since Easter's coming up I wanted a picture
with the Bunny at Children's Hospital   

Just chilling and waiting for Daddy

Busy Week


              We've had a busy week and its just gonna get busier.  Mommy and I are in a wedding this weekend (her sister and my aunt) and Daddy's the photographer so we're trying to make sure that we have everything we need to make her day flawless.  I have been eating extremely well (knock) and last time we checked I had gained back two of the four pounds I lost!  I go see my feeding specialist next week so hopefully I continue the great work and grain even more weight.  I have my juice and lots of snacks with tons of calories to help. So fingers crossed for good news next week.  This post will be short and sweet yet again since I don't have much to report. Thank you all for the kind words regarding Shaq through the last week it means a lot to our family.  Enjoy some more photos.

                                                                   

Being Goofy

I wasn't ready to wake up

Napping with Daddy

I love school buses

I wanted to share the pretty sunset pictures we got this last week

Rough Week 


       Before everyone starts to worry,  I am fine.  Nothing has changed with me at all.  We've had a rough week because we had to put our black lab, Shaq to sleep last Wednesday.  Mommy had him for 15 years.  We knew it was coming, but it was still especially hard for our family.  He was a great dog that lived a great life.  Like I said nothing has changed with me so I'll just post some pictures until next week.


     

Remembering all of the great days we had with Shaq

Saying goodbye

Eating cookies

Fighting Daddy

Being a good boy and playing in my room

FOOTBALL!

Blowing bubbles

Waiting on Daddy

Being cute like always

:)

Enjoying the nice weather 

Craft time! 

Koby

Running of some energy 

Just coloring 

Losing Weight


       This week has been good, but Mommy's worried because I've lost 4 pounds.  I am still eating really well so she thinks it might be because I am so active and I am also getting a lot taller, but she's not sure what the feeding specialist will think. We wouldn't mind if they decided to keep my tube in for a little while longer.  We just don't want them to tell us to start using my pump again.  I weigh 28.5lbs and normal for my age is 31 or 32.  I know it doesn't seem like much, but in my case it is. Every pound matters!  Mommy and Daddy ordered me more of my juice and also went shopping for me and got some foods that are high in calories so hopefully that helps me gain more weight.  Other than that all is well.  Please pray that I gain weight and continue eating the way I should be.  Thank you.  



                                                                                

Mommy said I reminded her of Jim Carrey 

All smiles while watching my dogs

Playing with Hunter

Watching a movie

And trying to get comfortable 

Happy March!


       Mommy, Daddy, and I had a good weekend playing with all the new snow that fell.  We are so happy it's March for two reasons. #1 My feeding specialist appointment is the 30th and we'll get to see what they think about me not using my tube.  I have been eating really well and even drank my juice the last few days so hopefully I am gaining weight and they are happy with where I am. And #2 because March means spring is coming and with spring comes warmer weather! I like winter because I love the snow, but there are toys that I want to play with that are summer/ outdoor toys. :) I have a new interest and Mommy isn't too sure if she likes it ;) ....TATTOOS!!!  Every time I go poopy in the potty I get a new tattoo and I love them!  They wash off within days and at first I was sad about that, but now I know that just means more room for others :) See Pictures below! Please pray that I am gaining weight and can impress my doctors when I see them!  Thank you.


                                                                                  

I didn't want Daddy to go to work

What I think about Mommy and Daddy getting their taxes done

My tattoos :)

Coloring with bathtub crayons