Hello again! It's me T.J. and thanks for visiting T.J. Tuesday. Today is Daddy's last day to spend with me until he goes back to work. He says he's really bummed, but I know he loves me and he knows I'm in the best place to be without him.
For those who don't know I have Long Gap Esophageal Atreisa which means my esophagus is not connected to my stomach (a 6 cm gap). Our plan is to wait until June 1st to test how long it has grown to see if I will stay and grow more, get a surgery to use my stomach or colon to replace my esophagus, or go to Boston to have a special surgery that will stretch my esophagus over a period of weeks to connect them. I also forgot to mention that only 1 in 4,000 babies are born with this every year. Children's Hospital only sees about 10 to 12 babies a year with this condition and only 1 -2 babies every 3 years that have Long Gap EA. For more info about my condition you can read the previous posts!
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| My bouncer! |
Measurements yay! I am 20.5 inches long (50-90th percentile), I weigh 6lbs 8oz (10-50th percentile) and have a head circumference of 34 cm (90th percentile).
Length: Mommy
Head Circumference: Daddy
Weight: Mommy and Daddy
Please leave ideas for pictures/videos you want to see or just leave a comment! I love you, see ME soon!
Want to send T.J. a greeting?
Use NICU room 5 for the room number.
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