Friday at 1:30pm I was taken downstairs with Mommy and Daddy to have an x-ray. The x-ray was part of my Gap study which tells how much my esophagus tubes have grown if at all. The 1st Gap study on May 1st showed the gap was 6cm which is almost 2 1/2 inches. The 2nd Gap study showed a gap of only 3cm!!! Friends and family this is great news. This means that Mommy and I shouldn't have to go to Boston. The surgeons at Children's want to keep me here another month and do a 3rd Gap study on July 1st to see if the gap has gotten any smaller so that they can do a surgery here to attach my esophagus tubes together. The main surgeon is very optimistic about me growing more in a month and a nurse and a family supporter both told Mommy and Daddy seperately that they haven't seen a baby grow more than 2cm since they have been there, if ever!!! So me growing 3cm is a big deal! I just wanted to thank everyone for all the thoughts and prayers and Mommy and Daddy want me to ask that you continue to do so until I get to go home :)
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(Right after the study) No tape on my face or tube down my throat!!! |
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