On Wednesday we went to the hospital for a swallow test and an upper GI. The upper GI was first and it didn't go as well as we wanted, but we did get some good news out of it. Bad news, my acid reflux acted up immediately. That means the J-tube has to stay in. My surgeon originally decided to schedule a surgery at the end of the month to fix my partial stomach wrap and make it a full stomach wrap to help with my acid reflux, but after looking more at my x-rays she saw that I didn't have enough stomach to work with since she had to pull some of my stomach up to connect my esophagus, so now instead of going through with the surgery we're going to wait a couple of months to see if my eating by mouth will help stretch out my stomach enough to do the full stomach wrap. If not we will have to decide if we want to use my small intestine or colon to help which we do not want to do. So please pray that my stomach will stretch out enough. The good news is that the test showed that my stricture is staying open better then what the doctor's expected. PTL!!! That means instead of going to the hospital twice a month we only have to go once a month! The swallow test could have been better, but we did get the OK to start taking thin liquids. So I am drinking my water out of my sippy cup, which I love to do (even though I don't get much out on my own and really just like playing with my cup). I love it so much that I have decided to drink my food out of a bowl. I still like to feed myself with my spoon though :-) My PT is getting better and better everyday, yesterday I even tried to get up on my hands and knees to start crawling, but there were too many people watching so I decided to just lay there and watch TV :-)
Even Super Heros need naps!
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