So besides my acid reflux and not feeling to well for a couple days, this past week has been another good week! I love being outside for the most part. This is my second summer, but my first summer out of the hospital so I can actually enjoy it! OT was better this week, but still nowhere near where I was before I developed my fistula. Not only am I battling my acid reflux, but I am also teething. I still love drinking water though so that's good. There was mention about a study going on at Children's that helps tube fed babies transition into mouth fed babies so I think we're going to be looking into that. Fingers crossed they have some helpful pointers! We still have not started PT, but only because I don't really need it. I'm doing more everyday and I can even stand for a little bit without holding onto anything so walking is just around the corner. I have an appointment next Thursday with my surgeon to talk about my acid reflux which has been extremely bad lately. I will also be getting an upper GI to see how big my stomach is and then we'll be able to talk about options and dates for my next (and hopefully last) surgery. I do have a new thing I like to do...I like to watch, dance, and sing to Daddy playing his guitars! I think I am going to follow in his footsteps! Mommy also did teach me one more new thing, how to spit! I think that's about it! Thank you for all your prayers. Please continue to pray for my acid reflux to get better and for my stomach to be big enough for my surgery. :)
Enjoying some sun
Playing ball with Mommy
Watching Daddy Play
I know I'm cute
Never too early to learn!
We would also like to send a shout out to Princess Maggie.
http://www.princessmaggie.com
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