I've been doing great! OT is getting better and better every week. I am still not eating like I was, but am working back up to it very well. I had a Nutrition appointment today and I haven't gained weight like she wanted (only by 1lb so nothing serious) but I haven't lost any which is great news since I was so sick for about 2 weeks. So nothing changed as far as feeds. She does want to talk to a specialist that specializes in transitioning tube fed children into mouth fed children. This is very exciting because obviously we want my tube out, but at the same time it's scary because we're not sure if I can handle my formula going into my stomach and the reason is because I have no tightening at the end of my esophagus that helps keep food down like everyone else does. so they are worried about aspiration. Also our surgeon has to be on bored and she isn't wanting to change anything at all. So we'll have to wait and see! The great news is that when I eat by mouth everything is fine and I am able to keep it down (for the most part) and control liquids. We will be sure to update everyone as soon as we know anything on that. We did get a new weight and length today and I am getting taller by the second. I weight 26.5 lbs and I am 35 in. tall!!! I am continuing to talk more and am learning to jump :) Special video edition: Watch my reaction to drinking grape juice.
fingers up my nose...I'm silly!
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