T.J. Tuesday

Long week

This past week has been super busy and not so great. In last weeks post I talked about how I wasn't able to eat without coughing things back up. Mommy was really worried so Wednesday she called my surgeon and they scheduled a test called an Esophagram the very next day (Thursday) this test allows doctors to see how well fluids go down my esophagus along with showing how big or small it is. The test showed they I had a stricture which means it was narrowing where she had attached it. It wasn't as bad as it has been in the past, but I thought this could be why I was having trouble eating so then they scheduled a dilatation for yesterday (Monday) this is where they stick a tube down my throat that has a balloon attached to it and they fill it up and stretch my esophagus back out. When I was smaller they would fill it with 10ml of fluid, but now that I am bigger they went to 12ml and everything went as planned. I have a certain doctor that Mommy, Daddy, and I love. He saved my life a year and a half ago and he was there yesterday by my side the whole time so that was nice!!! I used to have to spend the night to make sure everything was okay for 24 hours, but my surgeon allowed me to come home last night after I ate a whole popsicle and kept it down. The doctor said I could eat cool, soft stuff and then begin with my normal diet the next day (Today), but I was unable to keep things down last night and had a horrible time with acid reflux through the night and this morning. Once I got my day going I did much better I am not back to my normal diet because Mommy wants to make sure I can handle it and I only puked once today so that's a good sign! We've really just been focusing on that stuff for the last week. I obviously couldn't go to OT and I don't think we're going back until we get another esophagram done that shows I am ready. Please pray that I can eat whatever I want and it goes down smoothly and stays down and that my next test brings good news! Thank you so much.