Wednesday, April 30, 2014

Super Late Update.

       I am so sorry this weeks update is so late.  We've had bad weather the last couple of days and that caused a power outage.  This past week was BUSY, but a lot of fun. I am feeling a lot better this week than last even though I have a runny nose and have been sneezing a lot today.  Hopefully I'm not catching a cold.  I turned two and boy did we celebrate :) On my birthday day (The 24th)  Mommy and Daddy gave me gifts and then we went and had pictures taken, I did good at first then got tired of it, but quickly came back around and got some great picture of me with my toy car AND when we got home I got to take my first ride on out horse, Kate and I LOVED IT!  Saturday we went to another Easter egg hunt for high risk mommies and their families and I won my third egg hunt with 19 eggs!!! I am 3 for 3 on my egg hunts :) Sunday was my birthday party and I had a blast. We had basketball, bounce house, play house, roller coaster, water toy, games and cake and ice cream! It was a long but super fun day and I'd like to thank everyone who got to come.  Since Sunday I have had three doctors appointments all of which have gone really well.  My first one was to get a new G/J-tube (I get a new one every 3 months) and they gave us great news...I can swim! For the last two years everyone has told us my tube couldn't be submerged under water, but the radiologist gave us the okay. This makes us happy because my Grandpa Vance and my mommy are big swimmers and love the water so I am excited to try it out.  My second appointment was with my feeding specialist and they are very pleased with where I am and how well I've tolerated my g-tube feeds.  We are now on a four week journey to up my formula intake through my g-tube. I have been getting 30 ml of baby food, 15 ml of formula, and 15 ml of water 3 times a day. What we are working towards is more formula and one more feeding a day, so 30 ml of baby food, 30 ml of formula and 15 ml of water 4 times a day. We are going slow, but hopefully I can tolerate everything and keep moving forward.  My third appointment was my 2 year well visit and they are also very happy with where I am... I am 29 pounds and almost 36 inches tall.  My pediatrician thinks I'll be a tall boy and told Mommy to get ready for those big grocery store trips :) I also got a new tooth this week which makes 18 all together. I hope everyone survived the storms we got in central Ohio and has a great week.  I am going to post some pictures, but will try to post more from my party and our photo shoot as son as I can.
P.S. I'd like to wish my NICU buddy Markofe a very very happy and healthy 2nd birthday!



 
Riding Kate for the first time! I'm a natural.

 
My birthday cake and cupcakes Mommy and my
Aunt Ashley decorated!

 
My new play horse

And race car rug

I got to visit with the animals at Children's hospital during my appointments


 
I love this truck so much I took it to bed with me

 
Picking out a bedtime story

 
Putting on my hat in the mirror

 
So silly

Tuesday, April 22, 2014

Easter!

       I had a great Easter with my family!  Mommy, Daddy and I went to church and then headed out for family time.  I won the Easter egg hunt again this year with 43 eggs and had fun playing with the other kids :) OT was great last week.  I walked back all by myself and climbed in my chair and was ready to start!   This week I haven't been doing so well though... I haven't been feeling like myself for a couple days and we don't know if there is something wrong with my medicine we just refilled or if I caught something. Yesterday I couldn't keep anything down that I took by mouth and was uncomfortable during my g-tube feeds and went potty a lot.  Today I have been better so maybe just a 24/48 hour bug?  I am much more myself today and have been able to keep water, juice, soup, and crackers down.  So please pray that things continue to look up.  I will be the big 2 in two days. Where has the time gone? Enjoy some photos! 


 Such a happy boy just waking up
 
Easter

 
Dadda

 
Momma 


Easter egg hunt

 
Got it!


Woohoo


I got the most eggs

 
Playing with my cars is one
of my favorite thing to do.

 
Relaxing while Mommy does laundry!
  


Wednesday, April 16, 2014

Late Update. 

       Sorry for the late update.  Nothing has changed this week.  OT is going great as far as trying new things and eating more, but I am still throwing a fit when they call us back.  Once we're back in the room I am fine it's just as we're walking back and I used to love walking back!  We're hoping this passes soon.  For the most part I am doing really well since my dilatation sometimes I still cough things up, but no more than I did before my procedure.  I have an appointment with my feeding specialist coming up and we're anxious to see what she says because I am at the top amount of g-tube feeds she wanted me at and since I'm tolerating it and taking a lot by mouth we're wondering whats next!  I hope you all have a wonderful Easter and I can't wait to post pictures next week!  Thank you all for praying for me. 


 
I love stickers!

 
Smile

 
:)

 
Mean face!!!

 
Enjoying some nice weather last weekend

 
I love the lawnmower 

 
Happy boy

 
Video games with Daddy

Tuesday, April 8, 2014

Busy Week  

       This week was busy, but good.  I am still eating by mouth and doing really well (Knock on wood) OT was better last week than the week before and hopefully it keeps up.  I am now getting the full amount of G-tube feeds my doctors set up the last time we were there and I am tolerating all of it!!!  Also they said whatever formula I drink we can take away from my j-tube feeds at night and today was my first time ever drinking a full 8oz of formula.  I really don't like anything, but water so this is a very big deal.  It took all day, but I did it! On another good note I am starting to talk a lot more along with dance when I hear any music!  My favorite face to make is my mean face even when I'm not being mean!  Thank you all for your continued prayers! Keep it up and enjoy this nice weather Ohio is about to have!

 
Photo shoot

 
:)

 
I couldn't get any closer if I wanted to


Mean face

 
I stuck and got the break when Mommy was making me lunch

 
This is me showing Mommy how I got the bread in the first place

 
Eating a no bake cookie

 
My first time on a trampoline and I was a pro

 
Crazy hair!
 
Helping Mommy clean




Tuesday, April 1, 2014

April!

       Happy April everyone!  This past week has been pretty good.  Not much has happened. OT was alright I had a big attitude going in, but still ate a little bit and was happy by the time we left.  We found out this week that I love sprinkles and pulled prok!  Mommy realized while brushing my teeth the other night that I have another tooth coming in.  Today I ate more than I have since my procedure.  Mommy made me chicken noodle soup and I ate over half the can and then ate some of her lunch :) I am doing well with my g-tube feeds as well.  I started out at 15ml of baby food and 15ml of water and am now up to 25ml of baby food, 15ml of formula, and 15ml of water and tolerating everything just fine!!!  Taking steps in the right direction hopefully its stays this way! Please continue to pray. Thank you!  Here are those pictures I promised.


  
Happy Boy!

 
My mean face

It didn't last long

OT

  
Good Stuff

Saving some for later

Being silly

Just chillin while having a snack

So sleepy

Picking up sticks

:)

Sneaking some pulled pork

So so good

Being goofy with Mommy...see food hahah 

Helpping Momma