Tuesday, June 3, 2014

Appointment Time 

       We saw my feeding specialist yesterday and everything went well. They are happy with how well I am doing even though I didn't tolerate all of my feedings.  They decided to continue to go up on feeds a little each week until I meet a new goal or until I can't tolerate any feedings at all.  Right now I am at 30ml of baby food, 30ml of formula and 15ml water. Within the next 6 weeks I will be going up 5ml every week. Formula first then baby food until I reach 45ml of both.  The more we go up on my g-tube feeds the more we go down on j-tube feeds which is the 8 hours and 45 minutes of continuous feeds through the night. So another step in the right direction and we're happy with everything as long as I can tolerate it. OT has been great still trying new foods and working on words. I can say over 100 words!  I am also working on body parts (I love to point out my knees), colors (I know Yellow, Blue and Orange very well ), and shapes (All I really care about right now is the star shapes, but I know circle as well).  Please pray that I can tolerate my feeds.  It's past my bedtime, but I'll try to add pictures soon.  



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