Tuesday, July 8, 2014

Surgeon Update. 


       Okay!!!  We saw my surgeon on Thursday and shes super happy with everything.  She doesn't even want to talk about the Nissan surgery (Stomach wrap to help control acid reflux) We are extremely happy about this because we felt as if she was kind of pushing it on us before.  I might eventually need it, but since I am doing so well (knock on wood) we are waiting.  She said I looked great and she was happy with my weight. So we don't have to go back until November :) I also got a new G/J-Tube which went well although I was not happy about it at all.  Speaking of  my g-tube we went up another 5 mls of food which makes it 40 mls now and I have tolerated it just fine!!! We go up on feeds one more time before seeing our specialist next Monday and hopefully that will go just as well and we can move forward.  OT was awesome this week.  I walked back to the room by myself without hesitating or an attitude and then I ate spaghetti, green beans, carrots, and peas.  I did such a great job.  My therapist is very pleased with how well I am doing.  Mommy, Daddy and I are going to Indiana this weekend for a wedding that Mommy and I are in and I can't wait!  This will be my first time out of state (we like to stay close to our children's hospital, just in case.) I hope e everyone had a great 4th of July.  Mine was spent with family at a cookout and I had a great time! Thank you all for praying and please continue to pray that I tolerate my feedings. 


 
Reading the back of my new DVD :)

 
Mine and Mommy's mean faces

 
Waiting patiently for my surgeon

 
Eating a hot dog...bright flash  


Eating a carrot. Mommy called my Bugs Bunny


Driving my car

 
Helping Mommy feed the horses

 
4th of July picture


Driving out to see Kate

 
Feeding some more


And another 4th of July picture



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