Horse Show!


       I had my first horse show on my horse, Kate over the weekend and I had a blast!  I got third place out of four horses and riders(Ages 1-7).  I dropped my reins and you're not supposed to do that so I got some points knocked off for that, but I did a great job and Kate was very good!  Mommy asked me if I wanted to do it again in the future and as of right now I do.  I am sick right now with a little cold hopefully that goes away soon.  The bumps under my left eye went away again, but are now back so we are definitely going to see my pediatrician soon.  OT went very well considering I didn't feel too well.  We're still working on potty training and now every time I use the potty I get a prize!!!    

Lunch at my table with Mommy

Mommy and me about to go into my class

Practicing 

Watching Mickey Mouse

In my class

My ribbon

Kate, Mommy, Daddy and me!!!

  Skating fun!


       I am happy to let everyone know that I am now at 50ml of both formula and food and doing great! PTL.  OT was great this week. So great that she is considering cutting back on my visits which means going every other week instead of every week.  Mommy's not sure if shes comfortable with that, because I'm not eating nearly as much as I should be, but I think we might try it and if I start to fall back we'll go back to the schedule we have now.  I am doing really well with eating, but I still have a lot of bad days where I don't want anything.  I am continuing to talk more everyday and I love the reaction I get when I mock people.  This past weekend we had a birthday party to attend and I got to go skating for the first time and I had a blast.  I didn't want to give my skates back when the party was over.  This coming weekend I will be showing my horse, Kate!  Mommy used to show her all the time and now its my turn.  Mommy and I got matching outfits and I am so excited.  I can't wait to let all of you know how I do and show you guys pictures.  

Nice save!

Adorable..like always

Fun time

Cowboy T.J.

Getting the hang of it

Every cowboy needs a horse

Relaxing with Mommy

Skating with Daddy

Feeding Update


       This week has been great!  I finished my first ever plate of food.  Mommy and Daddy gave me pork chops, cheesy potatoes and green beans and I ate it all.  I also ate a whole jar of pickles in two days last week.  The bumps below my left eye were back yesterday, but after using the cream last night they are gone.  They have been coming and going for the past couple of weeks so if they come back again we will probably make an appointment to get it checked out.  I didn't have OT this week because I had to go to see my feeding specialist and it was a great appointment.   I wasn't all that happy when they called us back because Mommy and I were waiting on Daddy and I didn't want to go in without him, but I let them weigh me and take my height without crying :) which is the first time I've done that.  They were extremely happy with where I am and how well I've been doing.  I have jumped above the 50th percentile in weight!  I am now 30 pounds and almost 36 inches tall.  They said I am going through a growth spurt. We are continuing on the same path as far as upping my g-tube feeds (going up 5ml every week) for 8 weeks and then we go back to see how I am doing.  They did say since I was eating by mouth and gaining weight so well that we could start off by taking an hour off of my continuous feed at night which drops us down to 6 1/2 a hours a night which is amazing considering when I first came home I was on the pump for 18 hours a day.  Also I don't have to take a full g-tube feeding if I have a great meal by mouth. That way we're not over doing it.  By then end of the next 8 weeks I should (if I tolerate everything) be down to 4 hours and 45 minutes of night feeds!  Hopefully all of this goes well because as soon as I get down to 0 night feeds they can take my J tube out (not my G-tube just my J tube) and I wont need my pump anymore.  Please pray that I can tolerate all of my feedings and continue eating more by mouth.  Thank you so much.  

Being silly

Following Mommy

Chillin'

Duck at Childrens

:) 

Poor puppy

I love them

Mr. Cool

Sweet Smile

Good Weekend


       This past week has been good. We had a good weekend with different friends everyday.  It was great getting to see people I haven't seen in a while.  OT was okay this week.  I ate some soup and some pretzels, but didn't want anything to do with peas or carrots.  I did play a matching and remembering game and did an amazing job!  I am still on the same feeds.  I go to see the feeding specialist Monday so hopefully we can get things moving again.  Lately I have loved pizza and one of my favorite things to eat are pizza bagels! So good!!! I am doing really well with my mouth feeds just not enough to go without my tube yet. YET!! I will get there.  This weekend I got to go swimming for the first time and I LOVED it.  I had so much fun and was super sad when it was time to get out, but I got to swim again the next day!  I am still potty training.  I usually do well when it comes to peeing in the potty, but I am still unsure about pooping. This past week hasn't been so good with either of them though. I would just rather have my diaper on. I weaned myself off of my binky did anyone really think I'd do the same with my diaper.. I hope not! :-)         

Sharks!

Playing

Riding

:)

Helping Daddy with yard work

Eating pizza bagels

Swimming for the first time

HI!

Angel

Yummy taco