Tuesday, January 13, 2015

Everything is the same! 


       Nothing new this week other than we celebrated Mommy's 26th birthday!!! Happy birthday
Mommy!!!  

EA/TEF 
Esophageal atresia (EA) is a rare birth defect in which a baby is born without part of his esophagus. EA frequently occurs along with tracheoesophageal fistula (TEF). Up to half of all babies with EA/TEF have another birth defect, as well. Before treatment, babies are often unable to swallow, can’t feed normally and may have trouble breathing. Although EA can be life-threatening in its most severe forms and cause long-term nutritional concerns, the majority of children fully recover if it’s detected early. The best treatment is surgery to reconnect the two ends of the baby’s esophagus to each other. In some children, however, so much of the esophagus is missing that the ends can’t be easily connected. This is known as long-gap esophageal atresia. I had to be looked over and had quite a few tests done to make sure I didn't have any other birth defects associated with EA/TEF while doing these tests they discovered I had a stage 1 brain bleed and a small hole in my heart. (Both of witch corrected themselves. Thank God!), but they also discovered that I was one of the very few babies with isolated long-gap EA and I was also the very first that my surgeon ever worked on. Daddy and Mommy had never heard of EA/TEF when the doctors told us that I had it...We were one of the lucky families who got to prepare for it before I was born. Most of the time it goes undetected until the baby is born and starts choking or turning blue. Help make EA/TEF known. The whole month of January is EA/TEF awareness month please wear periwinkle to show your support and tell someone about T.J. or EA/TEF. ‪#‎January‬ ‪#‎EATEF‬ ‪#‎Awareness‬ ‪#‎TJ‬ ‪#‎BabyBoyBragg‬ ‪#‎LongGapEA‬‪#‎Periwinkle‬ ‪#‎BridgingTheGap‬



                                       Saturday morning cartoons in Mommy and Daddy's bed!



                                                              Birthday lovins for Mommy













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