Surgery Update!


       Surgery went well.  Everything went as planned and it only took an hour or so.  We thought maybe it would be canceled because my cough seemed to be worse Friday morning, but the anesthesiologist left it up to Mommy and Daddy and while Mommy was a little nervous,  Daddy thought it was okay and it was they saw no secretions or anything that would interfere thank God!!!  I did so well that my surgeon let me come home instead of stay the night.  Mommy and Daddy did take me to the troy store on our way home and I got a Thor hammer!!!  I was sore, but wanted to eat and drink immediately and within a few hours and after a long nap I was ready to jump around and play which made Mommy and Daddy nervous, but I am a boy and boys will be boys.  I had a couple incidents where it hurt so I had to slow down a little, but other than that I was totally back to normal by the next morning PTL.  I had my first post surgery shower on Sunday and the dressing stayed on, but on Monday it was time to take it off and I didn't like that one bit. I still have steri strips on and they will eventually come off on their own.  I also stopped taking Tylenol on Sunday cause I'm tough!!! :)  Thank you so much for all of your prayers and please continue to pray for a fast recovery and no infections!

                                                                              

Pre surgery 

Silly faces :-p

Post surgery!  

My cousin, Blakely came to visit on Saturday :) 

So sleepy

Late Post


       I know this post is late, but I wanted to wait until today because I still have a cough so Mommy made an appointment with my pediatrician to make sure it was safe for me to go through surgery tomorrow.  He said I was fine and he didn't see any reason why I cant have surgery and my surgeon suspected the same, but we still have to wait until tomorrow to see what the anesthesiologist thinks. Mommy and Daddy will probably just update Facebook  after surgery and post another blog next Tuesday.  Please pray for all to go as planned and for a quick recovery.  Thank you for reading and for all of your prayers.  

                                                              

Silly boy!

The many faces of me at the doctors...enjoy

So goofy

SNOW!!!


       It snowed this weekend and I couldn't be more excited!  I've been sick so Mommy and Daddy didn't want me to go outside to play, but I talked them into letting me go out for a few minutes!  Yesterday was Mommy's birthday so we went out to eat and got ice cream!!! We are sort of laying low that way I can get over my cold and hopefully be ready for surgery by the 22nd.

Since January is EA/TEF awareness month please read the story of one of the very first survives of this birth defect. http://www.eatef.org/node/40 

                                                                       

"Mommy take my picture" such a little model 

Nice and warm

Getting ready to play in some snow

Woohoo

Silly birthday picture!

Happy Birthday Mommy!

<3

2016


       HAPPY NEW YEAR!  I hope everyone had a fun, safe time ringing in the New Year!!!  We sure did! We got to go to Daddy's cousins house and I got to play with their kids...I had such a fun time and didn't want to leave.  Unfortunately I have another cold this week and we had to cancel my g-tube hole surgery that was set for Friday.  We have rescheduled it for January 22nd.

January is EA/TEF awareness month!  Most of you know what EA/TEF means, but did you know that very rarely is a baby diagnosed prenatally. Usually a family goes the whole pregnancy without knowing that there is anything wrong.

 Some ways an OB/GYN may pick up the signs of possible EA:

1. No or small stomach/no stomach bubble.
2. High levels of amniotic fluid.
3. Linked to vessel cords anomalies. (2 vessel cords)

-T.J. had no stomach bubble which was caused by him being unable to swallow.
-I had extremely high levels of amniotic fluid. I was drained twice and both times they drained 10 lbs
-T.J. did not have 2 vessel cords, but the umbilical cord was off to the side instead of in the middle of the placenta which was the reason we were sent to a high risk doctor in the first place and they are the ones that noticed the first two signs. Thank God!

Had my OB/GYN not sent me to a high risk doctor we would not have known that T.J. had a birth defect until he was born because all they noticed was my cord issue they said everything else looked normal and that wasn't the case. Either way its hard, but knowing in advance let us prepare ourselves, learn as much as possible, take hospital tours, talk with surgeons and so much more. These things that helped me the most are things most families don't get to do because these signs are often over looked...probably because people don't really know about EA/TEF. Please educate yourself and help raise awareness so maybe ultrasound techs will pay more attention.


                                                   

Funny Mommy

I helped myself to some ice cream...for breakfast 

I reeaalllly wants to open this :)

Play-doh breakfast, lunch, dinner and dessert 

New years with Daddy

New years with Mommy and Daddy

I was a sleepy boy the next day

Just playing on my tablet

"I don't want you to take my tree down...I don't have to let you"
"I want it to stay up a little longer"

Mommy let me paint as long as I let her take the tree down....well played Mom.

Look how small my hand used to be!

I was super happy to see snow!

Being a goofball... like always