I'm sorry about the late post. We wanted to wait until I saw my surgeon to update everyone. My week has been good. I did an awesome job at OT and swimming was good as well! I do have a cold, but I am getting better thanks to medicine. Now for the great news!!! I GOT MY J-TUBE OUT!!! My surgeon was amazed at how well I've been doing and how far I've come since seeing her in July. She had absolutely no problem taking the J part of my G/J tube out! I wanted to keep my tube. I started crying and kept saying "I keep it" but now I am happy its gone. One tube gone and one more to go! It is nice because the tube is a little smaller and if it accidentally gets pulled out Mommy can put it back in where as before I needed a radiologist to do it with an xray machine.. so no more worrying about that. And more good news... she said as long as I maintain my weight and I am able to drink and eat all of the calories I need we can talk about taking my g-tube out in June (The next time I see her) We are beyond excited! My eating specialist appointment was cancelled and rescheduled for the 29th so no update there...I am still eating extremely well and starting to drink more milk and juice, but water is still my favorite :) Thank you all so much for your prayers and continue to pray for me to eat and drink all the calories I need to get my final tube out!!!
Special shout out to my Mommy and Daddy- They have been together for 10 years! My Mommy was 15 and my Daddy was 16 when they fell in love!
Swimming with Mommy
Cheese :-D
Working on my scoops
Watching funny videos with Daddy
Waiting in the car with Mommy
Since I was good I got to watch a video on Daddy's phone
Bye Bye J-tube!
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