T.J. Tuesday

Merry Christmas and Happy New Year!

I hope everyone had a very Merry Christmas! I know I sure did! I loved opening all of my presents and I love playing with all of my new toys. Yesterday was my last appointment for 2014. I saw my feeding specialist and every thing went well. Mommy asked when we were likely to be able to take the tube out. She had asked my surgeon and she said we could talk about it in June at out next appointment which is great, but Mommy wanted to ask the people that actually know what my growing charts look like and what they thought about the whole thing since they're in charge of my feeds and everything. Mommy also asked if there was anything that would be equivalent to my formula such as a food or juice since I don't like the taste of my formula. They said there was a certain type of juice we can get and if I can drink one juice box a day I wouldn't have to drink any milk or have any put through my tube and as long as I could go from now until my next appointment (March 30th) we could talk about removing my tube. (Which hopefully wont be a problem since I have a new found love for juice) ;-o Mommy was shocked and super excited that they are willing to see where I am and think about it instead of sticking to a time table of what works best for other children. Usually they say a tube has to be untouched for 6 to 12 months before they will even talk about it, but since I'm doing so well and gaining weight just fine I guess they figured we can at least evaluate it. So we can't just go out and buy the juice I need. Mommy and Daddy have to order it, but we found it and are looking forward to trying it :) Please pray that I like the juice and I can go without using my tube until my next appointment!!! Mommy thinks I am starting to get my cold back, but has been giving me medicine and I sleep with a humidifier and that seems to be helping. We had no OT again and we're still unsure about when we're going back. Thank you foryou continued prayers. I hope everyone has a safe and fun New Year!